In China, a man turned to creating his own brand of medicine to cure his dying son.
The father named Xu Wei apparently tried to formulate your own version of a treatment for her two-year-old son who suffers from Menkes syndrome – a genetic condition that affects the way the body processes copper levels and causes slow growth, seizures and intellectual disability, often resulting in death to one. early age.
According to the data provided, Menkes syndrome primarily affects males, with an occurrence in approximately 35,000 male births.
At present, there is no known cure for Menkes syndrome, although an investigational drug has been released in an attempt to combat the effects of the disease.
Unfortunately for Xu and his son Haoyang, the drug is still not available in China due to border closures linked to the pandemic. This led to the desperate father trying to recreate his own version of the drug in a lab he created on his own.
“When I heard that there was a treatment available for my son’s disease that could theoretically work, even if he is far from normal people like us, I always thought I could at least let my son have that hope. “Xu said in an interview. with the South China Morning Post.
Do it himself.
Xu explained that although he only graduated from high school and had no formal medical training, he was determined to find a way to get the medicine for Haoyang.
This ultimately led him to convert his father’s gymnasium into a lab full of science equipment and learn about the drug creation process. He worked diligently on his project and just researched what he didn’t understand online.
Incredibly, six weeks of hardship gave Xu his first vial of the drug. He then tested it on rabbits and on himself before starting to administer it daily to his child.
Much to Xu’s delight, the drug worked, and regular blood tests revealed that the copper levels in Haoyang’s blood had dropped to that of a normal child.
âEven if the drug failed, I still wanted my son to have the chance to pursue hope,â he said.
News of Xu’s success eventually spread enough that other relatives across the country started asking him for medication, but due to the nature of the medication and where it came from, Xu refused to give or take it. to sell.
“According to the relevant policy of China, if you want to request the production of a drug, you have to go through a series of experiments on animals and humans,” he said while claiming the responsibility of no one other than his own child. “There are so many rules to follow.”
The resourceful father said that as long as he follows this rule, the local authorities will allow him to continue creating the drug for his child, which is the most important thing for both of them at the moment.
âThe most important thing right now is to save my son’s life,â he said. “After that, the next step is to let him recover from his injuries and slowly allow him to become a normal person.”
“After his recovery, I would also be ready to continue working on pharmaceuticals,” he added.
Now nothing less than an amateur chemist, Xu says his future plans involve studying molecular biology at a university. More recently, his work has also caught the attention of international biotech company VectorBuilder, which wants to work with Xu on Menkes syndrome research.
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Cover image from the South China Morning Post on YouTube.